M made it half a day before the school sent him home. He wandered away from the room he does his school work in. He was uncooperative. It doesn't matter to these people that he is mentally ill.
thinking of getting a lawyer involved.
Wednesday, March 30, 2011
a return to school.
Time goes so fast. It has been 10 days since my last post. :) M was in the hospital for his medwash. Came home last night. I took him to school this morning. I shared the med info with the school. I came home.
Shortly after I got home the school called. The principal told me that they need a discharge summary from the hospital for M. I asked why. The response was so that they could know what behaviors to watch for. I explained that as soon as I could talk to the doctor I would get her what they needed. Her response was that she needed it immediately. Then she told me that if M had any behaviors they would call me to come and get him. This upset me.
I called the doctor. She didn't sound happy and asked for the name of the principal and the telephone number for the school. She also asked me if I had an attorney. I asked if I needed one, and she said I might before we were done.
I then called the superintendent of the school district. I explained what the principal said, and told him that I was not happy that M had just gotten back to school and she was talking about sending him home already. I said that M has a right to an education. He agreed and said he would head over to the elementary school today.
I then got a call from the principal commending me on the doctor and apologizing if I misunderstood what she said about sending M home if he had a behavior.
About an hour later, I heard from the school again. They said that M was really tired and wanted to know what meds he took this morning. I explained what they were. I then talked to the special education coordinator and she said that M was really tired. And that he really shouldn't be at school because they didn't have a reentry meeting for him. I asked why we needed the reentry meeting, and she said it was because they needed to know what the doctor said. So I explained that the doctor had called and talked to the principal. The coordinator said that she would talk to the principal.
I am frustrated because it seems never ending to me that they want to keep M out of their school which is funded in part by my tax dollars.
Shortly after I got home the school called. The principal told me that they need a discharge summary from the hospital for M. I asked why. The response was so that they could know what behaviors to watch for. I explained that as soon as I could talk to the doctor I would get her what they needed. Her response was that she needed it immediately. Then she told me that if M had any behaviors they would call me to come and get him. This upset me.
I called the doctor. She didn't sound happy and asked for the name of the principal and the telephone number for the school. She also asked me if I had an attorney. I asked if I needed one, and she said I might before we were done.
I then called the superintendent of the school district. I explained what the principal said, and told him that I was not happy that M had just gotten back to school and she was talking about sending him home already. I said that M has a right to an education. He agreed and said he would head over to the elementary school today.
I then got a call from the principal commending me on the doctor and apologizing if I misunderstood what she said about sending M home if he had a behavior.
About an hour later, I heard from the school again. They said that M was really tired and wanted to know what meds he took this morning. I explained what they were. I then talked to the special education coordinator and she said that M was really tired. And that he really shouldn't be at school because they didn't have a reentry meeting for him. I asked why we needed the reentry meeting, and she said it was because they needed to know what the doctor said. So I explained that the doctor had called and talked to the principal. The coordinator said that she would talk to the principal.
I am frustrated because it seems never ending to me that they want to keep M out of their school which is funded in part by my tax dollars.
Sunday, March 20, 2011
medwash
The long awaited medwash begins tomorrow morning for M. I hate the thought of leaving him at the hospital by himself to go through this, but know that it is necessary. Hopefully this brings about the changes that help him be more stable.
eventful week
It was an eventful week. Monday the 14th I went to the dr because of dizzy spells when I stood up. Really high blood pressure. Got meds for that. Thursday had lunch with my wife and noticed some numbness in the left side of my face. It passed after 20 minutes but left me exhausted. That night it happened again, plus I was feeling dizzy even while laying down, and the exhaustion was even deeper afterward. Friday went back to the doctor. Had the numbness down the left side of my face, as I was explaining to the doctor what was going on, she called an ambulance. Spent Friday night in the hospital. The end diagnosis is I was struck by a series of mini-strokes. 39 years old. I am on the mend now, my face feels weird where the strokes landed, but feel good otherwise. Until my body adjusts to the lower blood pressure, will continue to feel dizzy.
Life is good.
Life is good.
Tuesday, March 15, 2011
New Psychiatrist - Busy Psychiatrist
Frustrated that I called M's Psychiatrist yesterday and they haven't called back. Left another message.
Receptionist told me that I needed to call over to some unit and ask if there was a bed open.
"nope," I said. "That is the doctor's job."
grrrrr!
Receptionist told me that I needed to call over to some unit and ask if there was a bed open.
"nope," I said. "That is the doctor's job."
grrrrr!
Monday, March 14, 2011
Personal Health
So how do I balance my health with the special mental health needs of M. I can't just tell my heart to behave. I feel like I am always "on" when he is around. Constantly aware of what he is doing. Constant vigil. It is hard. Today my blood pressure was intense. 162/106. Which is not good, especially considering the Heart Event I had in December. So back on the metropolol for my blood pressure.
Trying to get in touch with M's psychiatrist about that empty bed for him to begin his med wash. No luck yet.
M continues to act out like a baby, bark like a dog, and do those kinds of things, yesterday he stole a pocket knife and some other things.
Trying to get in touch with M's psychiatrist about that empty bed for him to begin his med wash. No luck yet.
M continues to act out like a baby, bark like a dog, and do those kinds of things, yesterday he stole a pocket knife and some other things.
Thursday, March 10, 2011
A blowout
M just had a major blowout.
M is very difficult to deal with him when he is like that. i had him in a basket hold and ended up laying across part of his body to keep him from hurting either me or himself.
When he does this we remove him from where his siblings are, as they get very upset about Marc's behavior. In the process of removing him, Marc latched onto a wall and ended up with pretty good scratches on one arm. Very strong when the adrenaline gets flowing.
I feel for him, I got him calmed down and everything was O.K.. All because I asked him where he had hidden a pastry in the living room. I now have a bruise where the incision was from when i had stitches a couple of weeks ago.
It is nothing compared to the terror he must feel when this happens to him.
M is very difficult to deal with him when he is like that. i had him in a basket hold and ended up laying across part of his body to keep him from hurting either me or himself.
When he does this we remove him from where his siblings are, as they get very upset about Marc's behavior. In the process of removing him, Marc latched onto a wall and ended up with pretty good scratches on one arm. Very strong when the adrenaline gets flowing.
I feel for him, I got him calmed down and everything was O.K.. All because I asked him where he had hidden a pastry in the living room. I now have a bruise where the incision was from when i had stitches a couple of weeks ago.
It is nothing compared to the terror he must feel when this happens to him.
Tuesday, March 8, 2011
A prayer
A prayer from a parent for their son.
God,
Even when he is having a bad day, we still love him, that is never in question. He exasperates us, makes us crazy sometimes, but we love him. He is our son, and important in our lives. We will take what You have given him and say thank you. THANK YOU. Oh, and God, if you are hearing this... please let tomorrow be a good day.
~ Amen
God,
Even when he is having a bad day, we still love him, that is never in question. He exasperates us, makes us crazy sometimes, but we love him. He is our son, and important in our lives. We will take what You have given him and say thank you. THANK YOU. Oh, and God, if you are hearing this... please let tomorrow be a good day.
~ Amen
Stuff
No word yet from the Dr, regarding M's med wash. All in due time.
It is frustrating, M is regressing emotionally. Sometimes it is like having a three year old in the house again. This past weekend he wet his pants a couple of times. We were at home, and have two bathrooms. The school special ed teacher noticed it too, after I talked about it in our communication notebook. A communication notebook is just a notebook that we write daily concerns about M in. The special ed teacher writes her concerns about the day, as well as any behaviors that she saw.
The other thing is he asked my wife and I to break his arm. Not sure what that is about. Life with M has been difficult at home. Some say he acts that way at home because he knows we will love him anyway.
Having M in the home is have an affect on our other four children.
We re-certified for SNAP (food stamps) today. I was told that I need to be actively seeking work. It doesn't matter that I am regularly being called to the school to care for M, or taking him or one of the other four kids to doctor appointments. All that matters to them is that I be working. My wife could stay home, but not me.
I don't understand why it is o.k. for moms to give up their career for their children and be stay-at-home moms, but not dads. I didn't do it willingly, but saw a need and since I owned my own business at the time, I was the logical choice for filling the role. We have since closed the business.
More soon. It will get better. I don't want to believe that it could get worse, so will go with it will get better. :)
It is frustrating, M is regressing emotionally. Sometimes it is like having a three year old in the house again. This past weekend he wet his pants a couple of times. We were at home, and have two bathrooms. The school special ed teacher noticed it too, after I talked about it in our communication notebook. A communication notebook is just a notebook that we write daily concerns about M in. The special ed teacher writes her concerns about the day, as well as any behaviors that she saw.
The other thing is he asked my wife and I to break his arm. Not sure what that is about. Life with M has been difficult at home. Some say he acts that way at home because he knows we will love him anyway.
Having M in the home is have an affect on our other four children.
We re-certified for SNAP (food stamps) today. I was told that I need to be actively seeking work. It doesn't matter that I am regularly being called to the school to care for M, or taking him or one of the other four kids to doctor appointments. All that matters to them is that I be working. My wife could stay home, but not me.
I don't understand why it is o.k. for moms to give up their career for their children and be stay-at-home moms, but not dads. I didn't do it willingly, but saw a need and since I owned my own business at the time, I was the logical choice for filling the role. We have since closed the business.
More soon. It will get better. I don't want to believe that it could get worse, so will go with it will get better. :)
Friday, March 4, 2011
Dr Psychiatry
Met with the psychiatrist. some of the issues that M has might be related to the combination of meds that he is on. We are changing his meds. Wholesale change in meds. We are going to hospitalize him as soon as a bed opens up and he will come off all of his current meds. (called a med wash) then we will start him on new meds, beginning with a med for the bipolar disorder and working out from there with the bipolar disorder as the base diagnosis and beginning point for treatment.
As the doctor says, we won't cure him, but we can help him be better, and then, in time, he can learn to control some of his behaviors. Every time she looks at the med list from our previous psychiatrist, she just shakes her head...
When they pull him off the meds, he will be in the hospital as it happens, we are the only ones who know for sure what he is like without his meds.
As the doctor says, we won't cure him, but we can help him be better, and then, in time, he can learn to control some of his behaviors. Every time she looks at the med list from our previous psychiatrist, she just shakes her head...
When they pull him off the meds, he will be in the hospital as it happens, we are the only ones who know for sure what he is like without his meds.
Cell phone theft
M stole again. Four cell phones from the school. I think that they are teaching resources.
Last week in our meeting with the school administration we asked them to escort M to the main hallway of the school where I wait for him and our other boys. To keep him from following through on the compulsion to take things that don't belong to him. The agreed upon solution was for me to wait in the hall outside the Resource Room. I won't do that until I get it in writing from the school, especially after they told me that people are intimidated by me.
here is a thought... what if the phones were intentionally left out? I can't prove it, but every teacher, staff person in the building is aware of the issues with M stealing stuff.
In order for him to be Successful, the school needs to be fully involved in the goal for him to be successful. They claim that they are, but my gut tells me that they would just as soon as get him out of the school.
Last week in our meeting with the school administration we asked them to escort M to the main hallway of the school where I wait for him and our other boys. To keep him from following through on the compulsion to take things that don't belong to him. The agreed upon solution was for me to wait in the hall outside the Resource Room. I won't do that until I get it in writing from the school, especially after they told me that people are intimidated by me.
here is a thought... what if the phones were intentionally left out? I can't prove it, but every teacher, staff person in the building is aware of the issues with M stealing stuff.
In order for him to be Successful, the school needs to be fully involved in the goal for him to be successful. They claim that they are, but my gut tells me that they would just as soon as get him out of the school.
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