heart events

had another heart event.  doctor tried to tell me it was just indigestion.  If that was the case, why did the nitro take away the pain in my chest?  plus, he gave me a script for nitro tablets.  if it was indigestion he should have given me something for that instead.  scary, this is the third one since Christmas 2010.  start meeting with a cardiologist week after next to do some testing.

a moment of brilliance

Every once in a while, not often mind you, but once in a while I am struck with flashes of brilliance.

When I talked to the psychiatrist this morning, I complained about how people were requesting records for our son from the hospital. Interesting thing happened then. She pulled up our son's file and was able to tell me exactly when records were sent to the residential facility where he is currently placed. Interesting. So I have a call into her office to determine when records were sent to the elementary school. :)

One of the tenets upon which the neglect and abuse charge was determined the way it was related to how the school requested records from the psychiatrist and never received them. If those records were purged from his elementary school file as I suspect they were, they would have a record of them at least being sent to the school.

I will be filing an appeal, but the more ammunition I can provide in the documentation for the appeal the better. How bad would it be for the school to be caught in a lie where records were doctored?

walkers

went to physical therapy yesterday, left with a walker.  blood pressure was a bit high as well.  the therapist said it feels like my legs are getting weaker instead of stronger.  continuing weekly visits for now, may increase to twice a week if improvement isn't shown.

yuck.

on a side note, talked to the staff at the residential facility regarding our son's return to public school.  she is going to push for a school planning meeting to take place so we can plan now for his return to public school.

I was invited to be on a task force for seclusion and restraint at the state level for department of human services.  meeting isn't until just before thanksgiving.

psychiatrist updated

I talked with our son's psychiatrist and updated her on his progress.  She thinks that he will be sabotaged if he goes back to his old school, which I agree with.  So we are advocating for a change in schools. I will homeschool him before I will let them mess him up again.

She is glad that he is doing so well in the residential facility.  But, saddened to hear the results of the abuse and neglect investigation.

testify - Legislative Council - Autism Bill

Going to testify about the emotional, mental and fiscal costs of an Autism diagnosis today with a team of three other people.  Promises to be an interesting day.  I don't mind talking to people.  I do mind, if they don't pay attention to what people are saying.  don't give us platitudes.

Wish us luck. :)

Partners in Policymaking

So I had my first session of Partners in Policymaking.  I think it will be a fantastic opportunity to learn how to be a better advocate for myself and others.  A lot of information was given out in a short time.  7 sessions left. each session is two days in length.

decision regarding the abuse and neglect complaint

Somehow the abuse and neglect complaint was decided without talking any witnesses.  The decision is that no services were required, because no evidence was found to substantiate that claim.  I guess it is ok to lock a child with mental heal issues in a room with furniture and other things such as scissors which he could use to hurt himself or others.

we are going to appeal.  I can't see how this can be acceptable practice.